According to her mom, Jenny, the then-15-month-old baby’s health seemed typical both in the womb and after her birth, yet an extraordinary event involving her skin moments after her arrival set the course for her unique childhood.
The baby, Ana, was reportedly born with a rare condition known as harIequin ichthyosis, a genetic disorder that leads to the deveIopment of exceptionaIIy thick and hard skin enveloping a significant part of a baby’s body.
Managing her condition requires a rigorous routine for the 15-month-old. Ana spends around four hours immersed in baths each day – twice in the morning and twice at night. Read the full story here ▶
